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Friday, July 9, 2010
Thursday, June 24, 2010
She's currently weighing in at 2lbs 5 oz and our big event for the day will be removing her ventilator. I think the plan is to put her first onto the CPAP. Not gonna lie, not a fan of the PAP-Mask. it looks dreadfully uncomfortable. But I get the whole thing about small steps. So, out with the tube, on with the mask. Sounds like a plan. They've spent the last day or so prepping her for this, with various treatments to reduce swelling in the airway so that she can breath more comfortably once the tube is removed. she's started wanting to suck her fingers and the pacifier, so I'm sure she will be thrilled to have one less thing in her mouth.
She's filling out and looks bigger for sure.
Ainsley on the ventilator
Getting ready for the move to CPAP with the foam "helmet" used to attach it.
CPAP has just been attached ... look at that sweet little double chin. Who'd have thought you'd find a double chin on a 2.5 lb baby. ha..ha
And finally ... getting to hold her. Never an easy task getting her out of the isolette, but so worth it when you get to snuggle her for a couple of hours. :)
Tuesday, June 22, 2010
Father's Day
Sunday, June 20, 2010
Moving Right Along ...
Movin' right along in search of good times and good news,
With good friends you can't lose,
This could become a habit!
I guess it's the "Movin' right along" part that seems to have the ring of relevance. Folks will ask how Ainsley is doing and it seems so uninteresting to say, "She's hangin' in there" or, "She's pluggin along", but really, that's all there is to say. For us, the more mundane the day, the better, but it seems pretty lack-luster when I pass along those reports.
Thursday, I arrived at the hospital and had a little more excitement then I'd anticipated. First, let me say this. On the way in that morning, I was talking to a friend and had just got done telling her how I'd finally gotten past where I kinda dread walking the last 10 feet around the corner to her room. You never know who or what you'd find once you got there. More often then not, the rooms quiet, occasionally the nurse is with her, but usually, especially lately, it's quiet when I arrive. Thursday morning I guess I jinxed it. ha..ha I walked into the room to see her nurse holding her in the isolette, gently bouncing her to calm her. To my surprise, she was wearing the nasal cannula. To my astonishment, it was because that little bugger had pulled out her vent tube. Ugh. They'd intended weening her off the ventilator, but she beat them to it. unfortunately, it before they would have the opportunity to help the swelling in her throat/vocal chords go down, so she had a tougher time breathing. After an hour or so, they determined it was best to re-intubate. Needless to say, the morning was much more eventful then we'd anticipated. Go figure.
Friday was a great day. Jonathan got to hold Ainsley for the first time that evening. I'd been lucky enough to hold her twice, but here she is, three weeks old, and Jon finally got to hold her. He made up for it though, holding her for two hours. :) It was pretty great.
Saturday morning, Jon headed up to Ainsley and I would join him later. Aunt Meredith hung out with the boys doing crafts and running around. As always, they had a great time. Meanwhile, Ron and Janet came up from Tucson and spent some time with us. I was able to hold her again that day - joyful since it's been two weeks since I'd held her last.
Overall, things are progressing slowly but surely. Her pneumonia has improved and her xrays have looked much better. Her feeds have increased daily and where she had started at 1cc of breast milk/6 hrs, she is now increased to 8cc/3 hrs. Right now the goals are for her to ween off the ventilator and gain weight. she's currently 2lbs. Sounds small, but that's a gain of 9 ounces and hey, that's more than 1/3 of her birth weight. Not too shabby. ha..ha...
Monday, June 14, 2010
Zoo Day
Look at that snowcone - good bang for your buck. Maybe next time we'll share ..
Even though Campbell insisted he could eat his snowcone without dripping on his shirt, I opted to just take it off. Proved to be my best move of the morning. His belly was coated in cherry syrup.
The Monkey villiage is always a good time.
The boys at the Flamingo's. Campbell started with a cheesy smile and when I suggested a less chessy smile,
this is what I got. ha..ha..
Week Two Comes to a Close
Monday: When I got to the hospital, she was on the C-Pap mask, by midday back to conventional ventilator and later back to the oscillating ventilator.
Tuesday: Diagnosis of pneumonia that morning, rough day for both of us. OK, probably worse for her, but I was a mess. I had my two week postpartum checkup that afternoon. Of course, since Dr Schwartz wasn't my primary OB, her medical assistant and I have never crossed paths. We've already established in earlier posts that I was more than slightly emotional. We got into the room and she started with her questions. 1. "How tall are you?" 2. "Are you nursing?". And with that, I burst into tears and apologies. Poor woman.
Had a lovely visit with Dr Schwartz. incision healing very well and looks great. Am really quite pleased with the whole thing. I told her that the C-Section was an easier recovery than the boys' deliveries. Seriously, it was easier to recover from the surgery than an episiotomy. Sure, it hurts to cough for a few days, and there are greater risks, etc... but the alternative means your best friends for the first weak or so will be a sitz bath, a can of solarcaine, a jar of Tucks and a squirt bottle of warm water. (OK, no comments about it being better for the baby, etc ... we're not talking medical preference, this is strictly post delivery rehab, here) Anyway, she reminded me not to recommend voluntary c-sections to my friends. So, please note: After delivering 3 babies; one without epidural, one with epidural, and one c-section, I preferred the last. But I take no official position on the topic. LOL)
Wednesday: Her x-rays were unchanged for the most part and it was really a day of recovery. She remained fairly quiet, just working to heal her little body.
Thursday: More or the same. I was at the hospital in the morning and Jonathan came as well. It was nice to have him there again. Later that afternoon, I left to pick up the boys to spend some time with them. I picked them up from Mimi's and we headed back to the house for a couple of days. Meanwhile, Jon was able to spend time with Ainsley. It was really great to spend some time with the boys after being apart from them for so long. I'd seen them when they'd come to the hospital, but it wasn't the same.
Friday: Jonathan spent the day with Ainsley and I spent the day with the boys. Her status was slowly improving each day. It was great.
Saturday: More of the same. The boys and I eventually made our way back up to Phoenix. Our first stop was to Ainsley and Jonathan for a visit. She was still making progress. Still on the oscillator, but the most important thing is that her lungs were able to rest while her body fights off the pneumonia. Later, Jon would have to head back to Florence, I would return to the hospital and the boys found themselves with Aunt Meredith at the movies. She took them to see Shrek 3. They love, love, love going to the "big theater". They were quick to report that they had been very good! ha..ha..
Sunday: They moved her back to the conventional ventilator. She had a good day, was doing well on the regular vent. Sunday afternoon we also had a quick visit from old friend Holly Glenn Carter who was in town for a day. It hard to believe we've been friends since 1984. Where does the time go?
And here we are ... The end of our second week. Hard to believe she's more than two weeks old. Amazing how time can fly and stand still at the same time.
Wednesday, June 9, 2010
Two Boys and a Girl
Ian was convinced it was a needle and would hurt. He'd just recently had blood drawn for his allergy testing and was no fan of needles. Campbell was not thrilled, but finally figured it out and did it under his tongue. Mimi and I took Campbell to see Ainsley while Jon and Ian worked through the temperature check.
Campbell was so sweet as he sat on the chair and looked in on his little sister for the first time. I wasn't sure how they would feel when seeing her attached to the many tubes and wires. But, true to the innocence of childhood, they saw right past it all. Campbell looked into the isolette and said "She's tiny" Then paused and said "She's beautiful". It was such pure, unsolicited love. Just made my heart swell. We stayed for just a few minutes so she wouldn't be disturbed and made our way back out to the lobby.
After we left the NICU we went back up to my room to visit for a few minutes before they left. Ian came to me and said "I'm glad your baby is out of your tummy now, Mom." It was cute.
Tuesday, June 8, 2010
Monday, Monday ...
It started at 5:30a with a text from Jon that Ian had woken with a fever and sore throat that looked like strep. He would take the day off and get him in to the Pediatrician. A rapid strep test indicated he did indeed have strep, so it was off for a RX and home to bed. I wished I was home to take care of him and at the same time, concerned about being around him for fear of bringing anything back here to PCH. But hopefully after a couple of days on antibiotics we'll be back on track.
That morning I got to the hospital and they were doing rounds outside her door - good timing, Dr Gutierez was the attending that morning. Always good to see him.
Anyway, Dr. Gutierez and his Residents were having a general discussion of head ultra sounds on pre-term babies under 34wks and why they do them, etc. As they did, they came into the room so "mom" could hear to. (I think it's so great how they include parents in as much as possible) After the discussion, he sent the Residents along and he sat down with me. He would draw me a picture of the brain to follow up the discussion. As we talked, he said "I'll tell you a story that will help you be less worried". (I assume he thinks this is possible. Ha!) He spoke of a very small baby who'd been born and his mother contracted chicken pox. The baby then contracted chicken pox and recovered at about 2.5 weeks old. However, after chicken pox, the baby got whooping cough. Eventually, they sent him home with the family. He wasn't responding and would likely pass. The family took him home where they had a coffin for him. But his mom continued to say he would be fine - she would feed him drops of milk between the outburst of coughing. They called him the little black baby because as we would cough uncontrollably, he could get no air and the brain had no oxygen. He would turn a dark purple. Then he would slowly start to breath again. This went on for several weeks until eventually, the baby began to improve and eventually was at full health. Of course, the baby was Dr Gutierez. His message was to be positive, have hope... things sometimes look bad, but they will be brighter. He said, "She has a mission ... I don't know what it is, but there is something for her to fulfill. Might take 6 days ... 6 years ... 85 yrs. I don't know. But she will do it " And then, he told me he was leaving for 4-5 days to speak at a conference in Mexico. "Booooo" (insert deflating balloon sound here.)
Back to the Monday Blues and background info:
Sunday afternoon Ainsley started these random drops in her Heart Rate... we've really focused more on breathing, so heart rate trouble was not welcomed. She was working harder to breath and her O2 level was increasing. Truly, she's just so little and everything she does right now exhausts her.
Monday morning when I arrived, they'd moved her from the cannula to the C-PAP, what I would describe as a mega cannula with a face mask. It looked terribly uncomfortable - more so than the IV in her forehead or the blinders she wore around the clock for days while under phototherapy. Throughout the day there were more dips in the HR, more struggles with her level of O2. By the end of a very long day, we were back on the ventilator, had another blood transfusion and the arterial line was replaced for the greater qty of blood draws. In words of Paula Abdul and MC Skat Kat "Two steps forward ... two steps back"
It was too much for one day - I think I've handled things fairly well, but I confess that I just had a hard time keeping it together - emotions were at the surface all day and anytime a kind hearted Dr or nurse would as if I was OK, the tears would come. ACK! I've said it before, I'm not opposed to crying and I welcome those moments so I can just release and move on... but really, I'd rather do a major out pour of tears than small ones, they just take too long and it never fully stops. I feel bad crying in front of people because I think it stresses them out just a bit... Not my intention, and really truly, I'm OK, but sometimes you just need to cry. Anyway, there was a lot of crying yesterday. (I confess this just so everyone knows I'm not trying to hold it all in... not to worry, I'm not afraid to cry.)
By Today, she had begun to stabilize again, numbers more on target. The blood and secretion cultures had not shown any growth as of yet, good news. Her hemoglobin levels were back up after blood, white blood cells were good, etc. They did follow up head ultra sound which was read by the NeoRadiologist and it was clear, not even Grade 1. Hooray! Let's face it, other things can be fixed, but brain hemorrhages are just not good. the heart scans also came back great. Good news. *sigh of relief*
Saturday, June 5, 2010
PHAT Tuesday ... aka (Pry-Holly-Away-Today, it's Tuesday)
You want to be brave and have this rock hard exterior. Mostly because you don't want everyone else to feel bad for you. And truly, I was fine... intellectually, I was good. I could wrap my brain around everything. But sometimes you just need to cry. That morning, every time I thought about her, I would cry. A resident would come in, ask me how I was doing... and I'd cry. My nurses would check in on me and I would cry. And of course they feel bad thinking they made you cry and I feel bad for them thinking they made me cry ... it was a roller coaster and I wanted OFF! Note to self (any anyone else in earshot): Never ask someone who's enduring a situation "Are you OK?". You already know they're probably not "OK", but will be in time and they're just going to tell you that they're "fine" and then burst into tears.
What's in a Name?
This go-around I'm a little miffed. I mean, how do you expect me to get cozy with a name when I didn't get my full 36-40 weeks of prep time. 27 weeks is way too early for me. So, not only do you have to get comfy with a name, you now have to hustle. I felt even more anxiety, because our little girl is down in the NICU and known to her doctors and nurses as simply "Girl Russell". How sad. I was at a crossroads, didn't want to feel rushed and yet wanted her to have a name.
We had a list of names .... but as always, we didn't all agree. In the past, it was just Jon and I who had a say, but this time Ian had a favorite as well. He wanted to call her Delaney. I won't lie ... part of me considered going with his choice just so he could say he'd named her and they could share that. Jon was partial to Sloane, and Ainsley ... we'd always liked the name Elise and for the longest time I thought that was the one... Elise - but we would call her Ellie. Turns out Ellie is becoming quite common lately and when I found out another Mom on the "best rest" floor was naming her baby Elise too, that name soon fell to the bottom of the list. I liked "Kate", mostly because of the way it flowed with the boys. "Ian, Campbell & Kate". I just liked the way it sounded as a "group". I tend to way over think these things. Sloane was out because every other person we mentioned it to associated it with Grey's Anatomy. Not having watched that show, we didn't know about Dr Sloane, or his daughter named Sloane.... I'm guessing there will be many more Sloane's out there... (side note 6/10:Tonight, our nurse, who is expecitng in Aug. mentioned she is having a girl. Her name is Sloane. LOL)
It was late Saturday and I'm sure I was still feeling somewhat overwhelmed with everything that had happened. I was growing tired of hearing "What's her name?" Of, course, that's a totally reasonable question when you've just delivered... I just didn't know. I wanted to see her, I wanted to get a feel for who she was, get a peak into her personality ... all things you can do when you deliver a full term baby. But our little girl was connected head to toe with wires and gadgets... and unless we were going to call her Duracell or lemon-head (seriously, her head was the size of a lemon ... ) I wasn't going to have that confirmation you get with a "normal birth" where you can cuddle them and get a good feeling of who they are.
So, Saturday evening, Jon went to grab a bite after seeing the baby and all I knew is that there was a little girl downstairs who needed a name. The caregivers should know here by name, not just "baby girl Russell". There were people all around the world who were praying for her and I wanted them to pray for her by name ... Sunday many would fast on her behalf and I wanted them to fast specifically for her and she deserved a name. So, I texted Jon and told him when he got back we needed to go back to to the NICU that night and tell them her name. I'd whittled it down to this, Elise Harris, Ainsley Harris and Anne Elise. (Anne had never been on a list, but it's my middle name, so I tossed it out there for a hot second. Anne Elise sounded good together, but we'd still use Ellie, so it was kind of mute.) So, Ainsley it was.
Ainsley Harris Russell. Jon really liked it, I was getting used to it and the boys could pronounce it. Sounds strange, I know - but I really wanted to be sure the kids could actually say her name. Harris is a family name on my side. Both the boys share names through the Russell side (Ian Clark and Campbell Forrest) and now Ainsley shares the maiden name of my Grandmother, Gwen.
I guess there was a sense of relief when she was named. She had an identity. A bit of the mystery was unravelled- this teeny tiny baby was now a person with a name, something that she will carry with her forever. Something that will help mold and define her as grows. Hope she likes it. I hope she doesn't look back at the list, kick us in the shins and say, "Seriously, Ainsley?? You had a killer list of names and you went with Ainsley". Man, you guys really stink at this name thing." ha..ha.
I think her having a name helped me too. Having a pre-term baby that's rushed to the NICU is very surreal. I'd just had a baby, yet beyond my C-Section incision and my elevated blood pressure, I had nothing to show for it. I'd been able to touch her, but had yet to hold her. Until now, it's like she was a baby in the NICU that shared our last name. Now, it felt different. Now, WE had named her ... Ainsley Russell ... and in a strange way, it felt different and a little more complete.
Friday, June 4, 2010
Nothing is Ever Routine
At 27 weeks... 27 and 3/7 to be exact, we were sent to Banner Good Samaritan Hospital for the duration of our pregnancy. Jonathan and I hurried back home so I could wrap my head around this news, get a few things in place and not feel as though I'd been completely knocked off my rocker. It was later in the afternoon before we made it back in to Phoenix and checked in at the hospital. Registration, admitting, the room, once over by the nurse, once over by the Resident, it took a while... Later, a visit from Dr Elliot, the High Risk specialist. who was candid and honest about what was happening. He'd not seen the scans at that point, but based on the findings concerning my placental blood flow, he felt we were looking at an asymmetrical growth issue. (it's called IUGR, Inner Uterine Growth R--- something. it escapes me right this minute) Problem here, is that it's not reversible, it will continue to worsen. There were measures in place to keep an eye on the blood flow. He told us making it to 30 weeks would be amazing. And unlikely. He felt it would be 8-10 days best. in his words, "We are going to push you to the edge of disaster ..." and then you'll deliver. Hmmmm... Well, he hadn't yet seen the scans from that morning, so Jon and I were thinking positive thoughts and really projecting for 32-34. Hey, he told us to think positive, it goes a long way. Jonathan eventually headed for home and I eventually had another visitor. Dr Guillermo, or Gutierrez ... I've heard him called both, Jon thinks it's Guillermo Gutierrez. I have no clue. But, I know his face and he knows mine and that's all that really matters. He's amazingly compassionate and already, I know we are better for knowing him and having Ainsley in his care.
I was overwhelmed with the news we'd received that night. Of course, they need to toss you each worst case scenario - I get it and understand it, but having had a seemingly picture perfect pregnancy to that point, it seemed like absolute insanity. Later, my nurse came in to insert the IV. she gave it one go and it didn't work so, she went for another nurse (side note: turns out she's just returned from being away with a broken hip. which she got bowling. Funnier when you realize she's only in her early 30's at best. she's still getting grief over it. LOL) Anyway. In walks nurse number two, and an answer to prayer. I looked up and saw the face of an old friend. Valree Hakes. It was such a blessing to see her and feel the warmth of someone you know so well. I know Heavenly Father sent her to me. I've never had a nurse give up after one stick of the needle. ha..ha..
I didn't sleep that night ... I remember opening the shades around 4:30 as I could see the pink in the sky as the sun was just starting to make an appearance. It always feels better when the sun shines. I finally fell asleep around 5:30 and slept for a good hour and a half until the Resident made her morning rounds. I had two thoughts that continued to come to mind.
1.) "Where Much is Given, Much is required"
2.) A chorus of a song, a duet that I'd known years ago and hadn't thought of in so long. The songs is someone pleading to Heavenly Father for strength and his reply .... something like this:
... Will thou encircle me, in the arms of thy love, I ask if thou will make me whole? Will thou encircle me in the arms of thy love and bring thy peace unto my soul.
... I will encircle thee in the arms of my love and la la la ..... can't actually recall the words now, but I hear the tune in my head and it ends "and speak my peace unto your soul".... Guess I'll be diggin' that music out again. ha..ha..
That day (Wednesday) , I had a positive looking ultra sound. Later Dad visited with the boys. I knew I'd be emotional when I saw them .... they walked in the door and I burst into tears, but quickly regained my composure and then was fine. Poor Ian just looked at me. But when I explained to him that I was just so happy to see them, he thought it was a solid explanation and quickly moved on. One of the most difficult things was knowing that I was leaving for many weeks and wouldn't be home with the boys and Jon. While I had an intellectual understanding of what was happening and how important it would be for the baby, it was nevertheless quite heartbreaking. Later that afternoon I went for what was expected to be weeks of twice daily hydrotherapy treatments. Trust me, a 30 minute soak twice daily ... not something you were going to have to coax me into. Of course, I think I threw my nursing assistant a little off track when she asked if I'd like to have the radio on and I said "Yes, can you find KTAR? It's 92.3" First, I don't think she'd heard of talk radio ... second, and not unlike my husband, she has no real interest in or understanding of why, talk radio should exist in the first place. ha..ha... But, it was my own moment of zen and I called the shots. ;)
I felt renewed and prepared for this journey. I knew our success was based on positive thinking, much prayer and faith, and patience. I was ready.
Thursday started much the same, breakfast, hydro tub, Dad and Amy came to visit ... Amy was so sweet to bring polish for my toes. (how did she know?? ha..ha.) It was around 2:00p that things got a little twisted. Twice a day we would monitor the baby for 20 min. Today, however, there was something unsettling about her readings to the nurses. So calls to residents were made, I was given cold juice, and tried to maintain my most awkward position. Turns out this little girl liked to sit right in my pelvis, move constantly and avoid anything that was trying find her. Seriously, once you had good read, you needed to be still until it was over. This is no easy task for a pregnant woman who needs the bathroom about every 10 minutes. At some point, Dr Schwartz (who was in for Dr Nelson who'd left the previous night for vacation) moved me over to Labor & Deliver for 24 monitoring. To say I've never been more uncomfortable is not an exaggeration ... and I've had two kids, only one with an epidural. May have been the stress, but I think it was the L & D beds, they were outrageously uncomfortable in comparison to other beds in the hospital. (and at this point, I've had three rooms and a couch in the NICU. Event Ainsley's couch is more comfy. LOL). We spent hours trying to calm the baby. there were more monitors, more ultrasounds and more chaos. The night dragged on. I tried to be calm. The Suns lost and failed to save the series, that didn't help ... it was a rough night. Dr Harman, the Resident on staff that night was in close contact with Dr Schwartz, who mentioned more than once that the last thing Dr Nelson said was "Keep that girl pregnant until I get home!" Won't he be surprised to discover that not only did we deliver, but she'll be more than 2 wks old when he returns. The last thing I said to him on the phone the night he left was "bring me a t-shirt". Hope he brings back two.
tThings continued to worsen with the baby and sometime after 10p, my blood pressure started to elevate. typically, my BP runs very low, so any increase is suspect. I guess it must have been around midnight or later that word came in that we had to just go. Dr Harman said numerous times that his job was to keep me pregnant. I know he hated to tell me we were going to deliver, but sometimes, I guess you just have to be "that guy".
Next thing you know we're in "Crash Mode". There are people swirling about, papers being signed. We rush to the OR, Jon's handed clothes to change as they wheel the bed thru the hall. There sits Dr Schwartz. She looks at me and says, "We have to do this .... a couple of those strips were just so bad... we have to do this now." And in we went. Spinal block, check. Moved to new table, check. "Can you feel this", check. In walks Jon and sits at my head. Flash. Awesome. I bet I look totally hot right now. I'm so unbelievable happy he got that shot for posterity. ha..ha... It happens so fast, I can see some of what they're doing reflected in the lamps above. She's out, and rushed to the NICU team. Jon goes to her. Schwartz tells me they didn't have to do the kind of cut on my uterus that they'd previously mentioned and that if I wanted to, I could have a V-Bac in the future. I told her not to worry, this was the last. She looked over the curtain and said "You can't make that decision right now". I said, "Trust me, that decision was already made." "Well, if you change your mind..." Yeah, not likely.
Then it was off to recovery for me, Pathology for my screwball placenta and Jon followed the baby to the NICU. And just as soon as it started, it was over. We had our little girl. We didn't know much about her, but she was here. All 650 grams of her ... or in "mommy terms" all 1lb 7oz and 13 inches.
So much for routine.